Trials of Grace
Life with Batten's Disease
September/October Updates 2024
Both girls were seen by their complex-care team at the hospital last month, and we wanted to share an update. Sophie had some issues that developed over the past couple months, and we were able to discuss them with the specialists. They became very concerned seeing...
August 2024 Updates
We apologize that so much time has passed since we last gave an update. It has been a bumpy start, but Charlotte has adapted to her seizure medication, and she is doing much better now. She still experiences seizures from time to time, but thankfully they aren’t as...
Comfort in the Midst of the Storm
Please pray for little Charlotte. This week has been a whirlwind for our family; Charlotte had three seizure-like episodes within 72 hours and was admitted to the hospital for treatment and testing. The neurologists confirmed Charlotte was having actual seizures, and...
Updates on the Girls
Thank you all for praying; God has been so good, and He is still granting so much peace and joy during this time. The comfort He is giving is overwhelming, and He continues to bless us with His goodness. Let me give a quick update for you all. Charlotte and Sophie had...
Do Not Fear Death
There is one subject almost universally uncomfortable to discuss: death. The more people we meet along this journey with Charlotte and Sophie, the more we are seeing how uneasy many are when we talk about the girls' Earthly end. We are grieved to observe that even...
Facing Fiery Trials
“Beloved, think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you: But rejoice, inasmuch as ye are partakers of Christ's sufferings; that, when his glory shall be revealed, ye may be glad also with exceeding...
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