Our whole world has changed since Charlotte’s and Sophie’s diagnoses. There are so many doctor’s appointments, evaluations, therapy sessions, phone calls, meetings with teams and specialists, and so much paperwork. We are busy driving back and forth between home and...

We are so thankful for her two years of life that God has blessed her with, and we look forward to sharing many more with her! We can only imagine all the things she would tell us if she could talk! Charlotte loves sunshine, sparkly things, music, and being outside!...

God has blessed us with two precious little girls. We feel privileged that He counted us worthy to care for these little souls. While it may be for but a short time on Earth, we eagerly anticipate the story God is writing for each of them and how many other lives they...

Most of you have heard about our daughter Charlotte's diagnosis of Batten's disease. It is a terminal illness, and she happens to have the rarest type characterized by a very short life span of 5 or fewer years. This form shows symptoms as early as 10 months old. The...

For several months now we have noticed that Charlotte is not thriving as a normal toddler would. Some motor skills seemed delayed, new skills she would learn she quickly soon forgot. Over time she stopped walking, talking, playing, and interacting with those around...