So many are praying faithfully for our little family and we are truly grateful for each and everyone of you. Here you will find specific prayer requests for little Charlotte, Sophie, and the rest of our family. We will try to update them as needed so you all may know how the girls are doing.
Charlotte:
- For her eyesight to keep progressing. Even though her motor development is regressing, her eyesight appears intact.
- For God to protect her from any illness. Her immune system is weakened and compromised by her disease and it will take weeks for her to heal from any virus.
- For her digestion system to keep working regularly. She has had some issues with her colon forgetting how to function properly
- For God to help her keep her oral sucking skills. Charlotte is able to take her formula from a baby bottle now and self-sooth with a pacifier at night.
- For her seizures to be few and her seizure medication prevent/protect her from having frequent episodes
- To reach for and try grabbing things during therapy “playtime”
- For the muscle tightness in her left and right Achilles to relax and stretch out so she can wear her orthopedic braces comfortably.
- For her medications help her reflux and minimize saliva secretions to she doesn’t choke frequently
Sophie:
- For her to be able to continue rolling over and enjoy tummy time
- For her to master a few fine motor skills such as grabbing and pinching.
- For her medications to help her movement disorder as eating and sleeping have become difficult for her
- For her muscles movement to cease so she may sleep more soundly during the night.
- For Sophie to gain more weight through her bottle feedings
- For her to help her keep her oral sucking skills. She is able to take her formula from a baby bottle now and self-sooth with a pacifier at night.
- For her eyesight to remain intact. With Batten disease, normally eyesight will start deteriorating around 15 months.
For both girls to be healed. Pray that God will repair the DNA that is broken inside of them causing this disease. We serve a great God who is capable of the impossible!