Trials of Grace
Life with Batten's Disease
Comfort in the Midst of the Storm
Please pray for little Charlotte. This week has been a whirlwind for our family; Charlotte had three seizure-like episodes within 72 hours and was admitted to the hospital for treatment and testing. The neurologists confirmed Charlotte was having actual seizures, and...
Updates on the Girls
Thank you all for praying; God has been so good, and He is still granting so much peace and joy during this time. The comfort He is giving is overwhelming, and He continues to bless us with His goodness. Let me give a quick update for you all. Charlotte and Sophie had...
Do Not Fear Death
There is one subject almost universally uncomfortable to discuss: death. The more people we meet along this journey with Charlotte and Sophie, the more we are seeing how uneasy many are when we talk about the girls' Earthly end. We are grieved to observe that even...
Facing Fiery Trials
“Beloved, think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you: But rejoice, inasmuch as ye are partakers of Christ's sufferings; that, when his glory shall be revealed, ye may be glad also with exceeding...
Doctor Appointment Updates (2/28)
Here are updates from Charlotte and Sophie’s doctor appointment last week: The doctor confirmed through a series of tests that Sophie is physically regressing; she still cannot sit up, and she has lost the ability to roll over. We are sad to see her starting to lose...
Every Good Gift Comes From Above
Psalm 9:1 "I will praise thee, O Lord, with my whole heart; I will shew forth all thy marvelous works." Even in the midst of the storm, God has shown Himself faithful to us over and over again. God has bestowed many good things upon us these last few months—so many...
Your Comments
We are encouraged by comments and questions from our blog visitors. We can’t guarantee that we will respond right away, but we will do our best to follow up with those who contact us.