Trials of Grace
Life with Batten's Disease
Do Not Fear Death
There is one subject almost universally uncomfortable to discuss: death. The more people we meet along this journey with Charlotte and Sophie, the more we are seeing how uneasy many are when we talk about the girls' Earthly end. We are grieved to observe that even...
Facing Fiery Trials
“Beloved, think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you: But rejoice, inasmuch as ye are partakers of Christ's sufferings; that, when his glory shall be revealed, ye may be glad also with exceeding...
Doctor Appointment Updates (2/28)
Here are updates from Charlotte and Sophie’s doctor appointment last week: The doctor confirmed through a series of tests that Sophie is physically regressing; she still cannot sit up, and she has lost the ability to roll over. We are sad to see her starting to lose...
Every Good Gift Comes From Above
Psalm 9:1 "I will praise thee, O Lord, with my whole heart; I will shew forth all thy marvelous works." Even in the midst of the storm, God has shown Himself faithful to us over and over again. God has bestowed many good things upon us these last few months—so many...
Faith of a Child
Each of our children is a special blessing from God and has a unique purpose. We believe God gave us our second oldest son partially to brighten our lives during this trial with Charlotte and Sophie This child knows how to make us laugh heartily until tears pour from...
Count It All Joy
God orchestrated many difficult trials for my family growing up; we experienced financial hardships, spiritual oppression, and persecution for many years of my childhood. While these hard times pressed upon us, my parents would bring us together, open God’s Word, and...
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